Clinical Engagement Liaison (CEL)

Why Join Us? Be a hero for our rare disease patients At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them. Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work. If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team . Position Summary: ultra focused – Work together to fearlessly uncover new possibilities Clinical Engagement Liaison is a knowledgeable healthcare provider and patient advocate who provides on-site and alternative site education to new and existing DOJOLVI patients and Health Care Providers (HCP) on topics related to Long Chain Fatty Acid Oxidation Disorder (LC-FAOD) and DOJOLVI. The CEL will provide on label facilitation of HCP prescribed titration and dosing of patient therapy by providing information and support to patients/caregiver and HCPs but providing no clinical decision making and referring back to their HCP when appropriate. Typically, this will involve working with a multidisciplinary clinic team consisting of clinical geneticists, metabolic dietitians, nurse practitioners, genetic counselors, pharmacists and other ancillary clinic staff, as well as patients and caregivers to prevent and address barriers to effective adherence to therapy. Work Model: Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed. Responsibilities: 1. Meet with patients and caregivers to educate on most effective methods and strategies for patient to understand and adhere to the therapy prescribed by the clinic, including dosing and titration 2. Support ongoing treatment adherence through personalized counseling and education 3. Engage and meet with the treating HCP/Registered Dietician and other members of the patient’s care team to implement an ongoing care plan to support patients that, among other things, mitigates side effects and improves compliance with therapy to improve health outcomes 4. Coordinate with other members of the Ultragenyx Patient Engagement Team as well as other Cross-Functional partners to ensure access 5. Attend relevant conferences, internal meetings/training, and maintain expertise encompassing all aspects of LC-FAOD disease management Requirements: · 5-7 years of prior patient engagement experience required · 3-5 years clinical educator/care coordinator experience preferred · BA/BS in the Life Sciences, Communications or Healthcare Management related degree preferred · Healthcare degree Registered Dietician or Nursing (NP/RN/BSN) preferred · Ability to travel 80% of the time · Individual must possess and portray strong emotional resilience, and calm demeanor under stress during difficult patient or medical calls or face-to-face meetings · Strong morality, ethics, and respect for confidentiality; including commitment to providing the recommendations from the clinic only and not providing health advice that is not approved by the clinic or on medication label. #LI-MD1 #LI-Remote The typical annual salary range for this full-time position is listed below. This range reflects the characteristics of the job, such as required skills and qualifications and is based on the office location noted in this job posting. The range may also be adjusted based on applicant's geographic location. This position is eligible for annual bonus and equity incentives. Actual individual pay is determined by demonstrated experience and internal equity alignment. Pay Range $175,100 — $216,300 USD Full Time employees across the globe enjoy a range of benefits, including, but not limited to: · Generous vacation time and public holidays observed by the company · Volunteer days · Long term incentive and Employee stock purchase plans or equivalent offerings · Employee wellbeing benefits · Fitness reimbursement · Tuition sponsoring · Professional development plans * Benefits vary by region and country Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law, including individuals with disabilities, disabled veterans, for pregnancy, childbirth, and related medical conditions, and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application, or in any part of the recruitment process, you may contact Talent Acquisition by emailing us at [email protected] . See our CCPA Employee and Applicant Privacy Notice . See our Privacy Policy . It is unlawful in Massachusetts to require or administer a lie detector test as a condition of employment or continued employment. An employer who violates this law shall be subject to criminal penalties and civil liability. Note to External Recruiters : All candidate activity and open positions are managed strictly through our Human Resources Department. Our Human Resources Department kindly requests that recruiters not contact employees/hiring managers directly in an attempt to solicit business and present candidates. Please note that failure to comply with this request will be a factor in determining a professional relationship with our organization. Submission of unsolicited resumes prior to an agreement set in place between the Human Resources Department and the recruiting agency will not create any implied obligation. Inquiries on developing a recruiting relationship with us, may be directed to : [email protected] .