Associate Director, US Patient Advocacy

Join us as we transform immunology and deliver medicines that help autoimmune patients get their lives back. argenx is preparing for multi-dimensional expansion to reach more patients through a rich pipeline of differentiated assets, led by VYVGART, our first-in-class neonatal Fc receptor blocker approved for the treatment of gMG, and with the potential to treat patients across dozens of severe autoimmune diseases. We are building a new kind of biotech company, one that maintains its roots as a science-based start-up and pushes our commitment to innovate across all corners of our business. We strive to inspire and grow our company, our partnerships, our science, and our people, because when we do, we deliver more for patients. At argenx , we are committed to putting the patient first. As a member of the US Patient Advocacy Team, you will play a key role within the broader argenx ecosystem in integrating the patient voice early and often into everything we do to better serve patients and their communities. This person will be responsible for acting as the primary point of contact for our external Patient Advocacy Organization (PAO) partners as well as our internal argenx teams to ensure we show up consistently as their partner of choice. To be successful, this person will need to set and maintain an indication-level Advocacy strategy, communicate the strategy to internal/external partners, bring the patient voice into development milestones (e.g., end point selection, etc.), and partner with our cross-functional teams to show up for our patient communities for in-market indications during the moments that matter. This is a remote-based position. To help meet the needs of the patient communities we serve, you will spend meaningful time in the geographies you cover, building relationships with PAOs and attending prioritized patient events either live or virtually as appropriate . At times, these events may take place outside of standard business hours, a flexible schedule will be developed to accommodate evening and weekend work. Key Responsibilities Include: Patient Advocacy Organization + External Engagement Responsibilities Develop and implement patient advocacy strategies and engagement plans for disease therapeutic areas, ensuring alignment with corporate objectives and strategies. Effectively balance and prioritize both pipeline indications and in market indications ( i.e. gMG and CIDP). Execute patient advocacy engagement strategy Nationally and/or in local geographies that are aligned with cross-functional teams for in-market indications, translating US and market strategies to actionable tactics & events Build and manage relationships with US PAOs Build understanding of patient needs through interactive engagement such as prioritized patient events, patient panels, and cross-functionally identified opportunities, etc. Provide local support to patient services team during the patient onboarding process Represent argenx externally at events & conferences to educate and engage with patients, empowering other teams to do so when necessary Define and measure business impact at local, regional, and national events Build and maintain proficiency in the disease state, Patient Experience, and product knowledge to support the needs of the community Internal Engagement and Cross Functional Responsibilities Inform local market engagement by generating and synthesizing insights for teams Work cross-functionally within the ecosystem of support at argenx to identify the needs and opportunities relevant to patient advocacy Be a voice for the community within the organization and within the Advocacy team based on assigned pipeline & all in-market indications Effectively manage internal operations, including compliant management of events, patient advocacy organization sponsorships, and budgeting process. Build and own the Advocacy strategy for assigned indications from development through in-market in collaboration with your TA-level Advocacy colleagues Ensure alignment of activities and prioritization to strategy through frameworks, standardization, and ways of working Requirements: Bachelor’s Degree required 10 years industry or related experience Proven capability and success implementing innovative programs within rare disease and with minority and underserved patient communities Proven track record setting and maintaining adherence to an Advocacy strategy for a given indication or Therapeutic Area Veeva experience and proficiency required Experience with rare disease patient interactions and compliance required Willing to travel up to 50% of the time and attend events outside of business hours (e.g., weekends and evenings). Flexible schedule will be developed to accommodate evening and weekend work. Skills, Knowledge & Abilities: Passion for understanding and championing the needs of people living with rare diseases, their caregivers, and their community, resulting in elevated Patient Experience S trong communication skills with the ability to listen actively, express ideas fluently and succinctly both in person and in writing, and present effectively; especially important to understand the perspectives of and work collaboratively with other argen x internal stakeholders Desire to integrate the patient voice into the end-to-end product lifecycle at argenx and the knowledge to know when, where, and how to do so Preferences: Advanced Degree #LI-Remote ‎ This job is eligible to participate in our short-term and long-term incentive programs, subject to the terms and conditions of those plans and applicable policies. It also includes a comprehensive benefits package, including but not limited to retirement savings plans, health benefits and other benefits subject to the terms of the applicable plans and program guidelines. At argenx, all applicants are welcomed in an inclusive environment. They will receive equal consideration for employment without discrimination on the basis of race, color, religion, sex, sexual orientation, gender identity, national origin, protected veteran status, disability, or any other applicable legally protected characteristics. argenx is proud to be an equal opportunity employer. Before you submit your application, CV or any other personal details to us, please review our argenx Privacy Notice for Job Applicants to learn more about how argenx B.V. and its affiliates (“argenx”) will handle and protect your personal data. If you have any questions or you wish to exercise your privacy rights, please contact our Global Privacy Office by email at [email protected] . If you require reasonable accommodation in completing your application, interviewing, or otherwise participating in the candidate selection process please contact us at [email protected] . Only inquiries related to an accommodation request will receive a response.