Director, Patient Advocacy & Engagement

At Viridian, we work with a sense of urgency for patients, creating unity with our team, the industry, and the community. We are committed to using proven science and engineering to improve the lives of people living with autoimmune and rare diseases.

Reporting to the Senior Director, Patient Advocacy & Engagement, the Director, Patient Advocacy & Engagement will lead the development and delivery of advocacy-related initiatives for our thyroid eye disease (TED) portfolio, with a special focus on market development and new product launches in the United States of America. Additionally, this role will manage the internal processes that support the patient advocacy function. The successful candidate will combine patient advocacy experience with strong project management skills, sound judgment, and a willingness to take direct responsibility for execution in a fast-paced biotechnology environment.

This role may be based in our Waltham, MA headquarters, which would be a hybrid role, or it can also be fully remote. Our office-based employees are required to work in the office three (3) days a week. If remote, travel to headquarters for meetings would be required at the discretion of management.

Responsibilities (including, but not limited to):

• Build, strengthen, and sustain trusted relationships with U.S. based advocacy organizations, patients, care partners, and other stakeholders within the TED, vision, autoimmune, and rare communities
• Develop and own the U.S. enterprise patient advocacy strategy and annual plan for the TED portfolio
• Shape and execute commercial launch readiness activities by leading patient advocacy input into launch planning, market preparation, and stakeholder engagement workstreams, and own related deliverables
• Collaborate with cross-functional teams to develop educational resources, disease awareness activities, and other initiatives to support new product launches and long-term TED portfolio success
• Plan and execute community roundtables, patient advisory councils, patient listening sessions, and other engagement activities to capture community experiences, perspectives, and needs
• Identify and synthesize patient community insights into actionable findings, share recommendations with relevant internal teams and champion necessary action
• Represent Viridian at patient community meetings and events
• Ensure all interactions with advocacy organizations, patients, care partners, community stakeholders adhere to internal and external requirements as defined by local laws, regulations, and industry codes
• Own the patient advocacy U.S. TED budget, including sponsorships, grants, vendors, and consultants
• Manage contracting, logistics, materials development and review, participant recruitment and coordination, and follow-up for patient advocacy run activities
• Oversee review, contracting, and payment of patient advocacy sponsorships, grants, and memberships
• Direct day-to-day relationships with consultants and vendors, ensuring accountability for scope, quality, timelines, and budget

Qualifications:

• 12+ years of experience in patient advocacy, patient engagement, patient services, patient marketing, or related healthcare functions, including direct experience within the pharmaceutical or biotechnology industry
• Bachelor’s degree required; advanced degree in public health, healthcare, communications, social work, business, or a related field preferred
• Deep understanding of patient advocacy organizations and demonstrated ability to build respectful, productive relationships with organizations, patients, care partners, and other community partners
• Demonstrated experience supporting commercial product launches and developing patient-facing educational materials or engagement initiatives
• Experience applying health literacy principles and incorporating patient input into materials and programs preferred
• Understanding of Patient Advocacy operations, MLR and PRC review processes, compliance requirements, and the regulatory environment governing advocacy organization and patient engagement
• Proven success leading complex cross-functional initiatives and influencing stakeholders across multiple functions and levels of the organization
• Strong strategic thinking, problem-solving, and decision-making capabilities, with the ability to navigate ambiguity and competing priorities
• Strong organizational skills and attention to detail, with the ability to prioritize competing demands and consistently deliver high-quality work
• A proactive, solutions-oriented approach and sound judgment about when to act independently and when to escalate
• Strong commitment to ethical standards
• Proficient with Microsoft Office suite (i.e., Word, PowerPoint, Excel, Outlook, SharePoint, etc.)
• Ability to travel up to 30%
• The salary range for this position is commensurate with experience

Viridian offers a comprehensive benefits package including:

• Competitive pay and stock options for all employees
• Medical, dental, and vision insurance
• 100% Paid Parental Leave
• Short- and long-term disability coverage
• Life, Travel and AD&D
• 401(k) Company Match with immediate company vest
• Employee Stock Purchase plan
• Generous vacation plan and paid company holiday shutdowns
• Various fertility, mental, financial, and proactive physical health programs

Viridian Therapeutics, Inc. provides equal employment opportunities to all employees and applicants for employment and prohibits discrimination, harassment, or retaliation of any type without regard to race, color, religion, age, sex, national origin, disability status, genetics, protected veteran status, sexual orientation, gender identity or expression, or any other characteristic protected by Federal, State, and Local laws. Viridian will ensure that individuals with disabilities are provided reasonable accommodation to participate in the job application or interview process, to perform essential job functions, and to receive other benefits and privileges of employment. Please contact us to request accommodation.

Viridian Therapeutics, Inc participates in E-Verify, the federal program for electronic verification of employment eligibility.